March 15, 2012

A Morning with the Neurosurgeon

Follow up visits... We are now four and a half months post-surgery, and RJ had a follow-up CT scan and neurosurgeon visit this morning. I was hoping for it to be the last for quite a while, if not just the last.

The CT that was done 3 months ago was very good, with just a small spot remaining of fluid-filled space (about the size of the pinky finger to the first joint). Considering the large clot (fist-sized) that had been on his brain, this was simply amazing! His scan today revealed no remaining fluid or spaces, his brain has completely healed, woo-hoo!

On top of the healed brain, the skull has also begun fusing back together. This was unexpected due to his age. Since most of his growing is done, the skull wasn't expected to repair itself at all. Just goes to show, he's an amazing kid (I always knew that!)

Next up for him is an appointment with the Hematologist at the end of the month. They are going to try him on a medication to help with his clotting disorder, so this one will be a long appointment. There's blood tests to run, medication to be given, vital signs to check, waiting to do, then more blood tests and more waiting. I will have to remind him to bring a book or something to do for that one. After that, he may have blood tests that need to be done regularly, but hopefully no more office visits with them either. I am hoping our family doctor can take over again after that.

We've been extremely lucky with everything that has happened the last several months, and I thank God every time I go to work and don't have to see my child in the position of those I take care of there.

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