November 8, 2011

10 Day Checkup

RJ went for his 10-day post-op CT and checkup with the neurosurgeon today. Everything looks great, his brain re-expansion is looking wonderful! He originally had some deviation from the mid-line (after surgery), but that has corrected and his brain is decompressing nicely. He also had the staples removed today, which went smoothly and (he said) rather painlessly. I'm glad for that, he's been through enough pain!

After a weekend filled with pacing and repeated entreaties of "I'm Bored," he returned to school Monday, and spent the first part of his day there today also. He also returned to his college course tonight.  Now he gets to play catch-up with his classes, though he says there's not too much he's behind in. Since he has almost all AP classes, I am very glad for that too!

He is remaining on the anti-seizure medicine, and will be able to taper off that at the end of the month. He has more blood tests to be done, another CT, and follow-ups with the Hematology and Neurosurgery doctors the first part of December. Neurosurgery is trying to make the CT and appointment the same day as the Hematology appointment, I hope they can! One day of parking and appointments would be so much easier than 2, for all of us.

Almost forgot, he's being double-checked for Von Willebrand's disease with next month's blood tests, to see if that played a part in the clot. I will also have his CT scans at that time, the doctor told us to just ask for them at Radiology when we asked for a print of his pre-op brain ;)




November 1, 2011

Getting back into things....

Today my mom & dad took turns hanging out with the boys. Mom took the first shift, while I was at work, and dad took the late shift, while I was at school.

RJ felt well enough to pop onto Facebook for a minute, and he played on the X Box for a little too, until the numbness in his hand made it too hard to play (it worsened as he played). He's feeling better, but still tiring easily.

After talking a little about school, we've decided that the best way for him to return might be to start with his college class. It will be quieter to begin with, shorter than a full day, and if he's not feeling well it will be easier to leave also. Since I'm on campus at the same time, he'll also have help if he needs it, and we can leave when he's ready. One of my instructors already knows what's going on (missed her class last week) and the other one will be mostly lab time from now on. Easy enough to get out of if need be.


Now that things are settling out, I am going back to less frequent posts. Thank you all for keeping up with us, and for all the prayers, well-wishes, and offers of assistance. They're much appreciated! We have truly been blessed :)